I was born into this world a perfectly normal, healthy, happy human being. I had ten amazing years of good health and happiness. At ten years old, I became sick with KLS. It forever changed my life. I no longer look at having KLS as a horrible thing. If I can help just one person get diagnosed and find support, I know I will have contributed to society in a very positive way.
Before KLS, my family and I had lived the ideal American family life. My mom stayed home with my older sister and me and my dad was a firefighter which allowed us to take many family vacations while competing in tennis tournaments. I was a well adjusted child and excelled in school, social, and athletic events. Most importantly, I was a very happy person.
When KLS hit at ten years old, I went undiagnosed for the next seven years. I functioned through many episodes which caused much heartache. The illness is cyclical, but when sick it leaves you with altered behavior, memory loss, and an altered level of consciousness. So, of course, it caused many social problems.
Looking back on the 24 years that I’ve lived, even though KLS had devastated many parts of my life, I am grateful for the life lessons it has taught me.
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