Goodnight KLS! from April; USA

The following photo is by: April

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/ 

Thank you, April for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

How to Find the Right Doctor When Living With KLS

How to Find the Right Doctor When Living With KLS

Every KLS case is similar yet so different. What may help one person, may not work for another. The brain is so complex not every person’s reaction to a treatment is going to be the same. You may need to experiment with different medications and dosages to help you with your symptoms. That is why it is so important to find a good, compassionate doctor who is right for you. Finding the right doctor needs to be a top priority. Once you find the right doctor that is willing to work with you, your quality of life may improve, your health care will improve, you will feel safe sharing information, and you will know that your doctor cares about you. Finding the right doctor for KLS is not going to be easy. It will take effort and patience. A good way to begin your search is to use information from your current doctor’s experience. If you are seeing a doctor at the moment and are unhappy with the care you are receiving, ask yourself these questions. 1) What do I like about my doctor? 2) What don’t I like about my doctor? 3) What type of environment do I want? Writing down your likes and dislikes will provide you with a good list of what you want in a doctor.

How to Find the Right Doctor When Living With KLS

How to Find the Right Doctor When Living With KLS

Because KLS is rare, it may be difficult to find a doctor who knows about KLS. A good starting point is going to the KLS Foundation website and looking at the Doctors Familiar with KLS page to see if there is a doctor in your area familiar with the disorder. Here is the link: http://klsfoundation.org/doctors-familiar-with-kls/

If there is no one on the doctor’s list in your area, try calling one of the doctors closest to your area from the KLS Foundation’s list and ask for a doctor’s recommendation in your area. Or you could ask if that doctor would be willing to see the KLSer. You could search for a Sleep Specialist or a Neurologist in your area. Many Neurologists and Sleep Specialists are interested in rare conditions and would love the opportunity to work with you. Another suggestion is to ask for referrals in the KLS support groups. You can join the KLS Support group by clicking here: KLS Foundation Facebook Support Group. There may be a KLSer in your area who will know of a doctor familiar with KLS.

Doctors see many patients throughout the day, so you need to be prepared and ready for your appointment. When scheduling your appointment to see a doctor, ask how many minutes your appointment will be. Try to schedule enough minutes to get through all your concerns. Be prepared with a list of questions you want answered. An example might be, “What medication can relieve this symptom?” Be prepared to write down important points. Ask the doctor to write down any treatments, symptoms, medications, etc. you may want to research for yourself so that you can decide if that is the approach you would like to take. Having someone with you at your appointment is very important. That person will be your second set of ears and will be able to catch things you may have missed. Remember-you are the expert on KLS. You know your symptoms, your body, and your experiences. The doctor knows treatments. After you decide on a treatment together with your doctor, be sure to evaluate how that treatment is working. Stay on top of your medical decisions and be proactive in your care.

I hope you found this post helpful! If you did, please leave a comment below. I love hearing from you!

With Love,

Alanna

P.S. If you haven’t purchased the Kleine-Levin Syndrome (KLS) Guidebook, you can do so here: http://alannawonglife.com/shop/klsguidebook/ 

Read Disclaimer here: http://alannawonglife.com/disclaimer/

N-StyleID Medical ID Band Giveaway!

N-Style ID

N-Style ID

Medical ID alert bands can be considered as one of the most helpful tools that an individual suffering from a medical condition can have. It can show others that the wearer is suffering from a specific health condition. N-Style ID bracelets are the most popular type of medical ID alert band that can be found in today’s world. Many people are aware about the fact that a medical ID bracelet can save the life of a person, and it is helpful for a person living with a condition to have a medical ID band! I have teamed up with N-StyleID.com to giveaway a credit of $75! You can enter the contest below! Keep reading on to learn more about N-Style ID.

a Rafflecopter giveaway

The medical ID bracelets at N-StyleID.com are available as men’s bracelets, women’s bracelets teens bracelets and kids’ bracelets. Therefore there is something for everyone in their collection of medical ID alert bands. Why do you need to purchase medical ID alert bands from N-Style ID? The medical ID bracelet has the ability to hold all the important information about your condition. There is a wide range of bracelets to choose from. There are sleek, modern, casual, fashionable, fun, hip, and classy bracelets to choose from! There is a medical bracelet for every occasion! The medical ID bracelets are made out of stainless steel and other related materials. Therefore, you don’t need to worry about their look or durability. And the prices are very reasonable! Everyone can afford a band from N-Style ID! The bracelets come with FREE engraving which is a huge bonus when purchasing a Medical ID band. N-Style ID also makes bands for non-medical people. If you are going on vacation and taking your kids, it would be smart to pick out one of their non-medical ID bands so that if anything were to happen, they have contact information on their stylish ID bracelet. Check out their kids selection of bands here: http://www.n-styleid.com/children.html

N-Style ID

N-Style ID

More than 100 million people in the U.S. alone live with a chronic condition! Medical ID bracelets play an important role in society and every person who has an illness could benefit by purchasing one. N-Style ID is the perfect place to shop for medical ID alert bands, and you can purchase from them without any hesitation. I hope you choose N-Style ID when purchasing your medical bands/ID bands! If you haven’t already entered the contest at the top of this page, be sure to do so! It’s your chance to win a $75 credit to N-Style ID! Good luck! Also, be sure to connect with N-Style ID via social media if you haven’t already done so! The following are their social media channels: BlogFacebook. Pinterest. Twitter. Google Plus.

I hope you enjoyed this post!

With Love,

Alanna Wong

Goodnight KLS! From Wong’s; Hawaii

The following photo is by: Diane, Melinda, Kaia and Randy

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, to the Wong’s for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Ehrick; Mexico

The following photo is by: Erick

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Ehrick for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Hurley; USA

The following photo is by: Hurley

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Hurley for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Bentley; USA

The following photo is by: Bentley

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Bentley for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

7 Tips to help with sensitivity to light and noise

tips7 Tips to help with sensitivity to light and noise

There are many chronic conditions in this world. In a recent centers for disease control and prevention article, they stated that “As of 2012, about half of all adults—117 million people—have one or more chronic health conditions. One of four adults has two or more chronic health conditions.” You can read the full article here: http://www.cdc.gov/chronicdisease/overview/ I know that my condition comes with sensitivity to noise and light. I’ve also heard of other chronic conditions experiencing symptoms of sensitivity to noise and light too. I want to share with you some tips that I have found to be helpful coping with these symptoms.

Watch TV and movies with subtitles if you are sensitive to noise. When I was ultra-sensitive to noise, my caregiver (my mom) would set the TV to where she would watch it with subtitles. That helped keep my brain quiet and she was still able to watch TV. It’s important to keep your mind calm and quiet when dealing with sensitivities to noise.

Identify your triggers. You may only be bothered by certain noises, so it’s important to know your triggers. Whether its programs with suspenseful music or big crowds of people, you will need to know what noises bother you so you can limit them. Do your best to limit and avoid the types of noises that are triggers.

When going outside, where sunglasses. If you are sensitive to the light, it is critical to protect your eyes by wearing sunglasses. I am giving away a free pair of black polarized Bamboo Hybrid Sunglasses. You can enter to win them here: Polarized Sunglass Giveaway – 2 Winners and here: Brand Name Sunglasses/Prescription Glasses Giveaway – 8 Winners! 

Keep your cell phone on vibrate. Instead of having a ringer, you can put your cell phone on vibrate. This will help limit the noise.

Draw the curtains. During the day, the sun can get very bright in some homes. If it gets bright and you are sensitive to light, it’s helpful to draw the curtains so that you do not have a sun glare.

Be honest. If your symptoms are acting up and you are with others, it’s best to be honest. Explaining your situation will most likely be of benefit to you because the people around you can be more sensitive and understanding. People may not understand you facial reactions to the stimulation around you. Just being in the sunlight can cause my eyes to tear.

Don’t have multiple things on at once. When you are home by yourself, or in the car, you have complete control over the noises, so be sure to limit them. Don’t have the TV and music on at the same time. Limit your noise. Focus on one thing at a time instead of having multiple noises and devices on. It will lead to a more peaceful and quiet environment.

I hope you enjoyed this post! Comment below with any other tips you have if you are sensitive to noise and light! And be sure to enter to win a pair of sunglasses here: Polarized Sunglass Giveaway – 2 Winners and here: Brand Name Sunglasses/Prescription Glasses Giveaway – 8 Winners! 

With Love,

Alanna Wong

Goodnight KLS! from Emelie; Sweden

The following photo is by: Emelie

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Emelie for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Randi; USA

The following photo is by: Randi

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Randi for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

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