Why the KLS Syndrome Guidebook?
After living undiagnosed for eight years, we wanted to provide a guide to those suffering with Kleine-Levin Syndrome. The hopelessness of not understanding what this syndrome is, the despair and grief of losing so much, and the isolation and loneliness can be too much to bear. This guide will help you understand what KLS is, what the effects of KLS are, how to survive the KLS struggle, and how to build your support system.
Does your loved one wonder, “Am I alive or am I dead?” “Is this real or am I dreaming?”
Does your loved one fall into sleep spells lasting days, weeks, or months? Does your loved one experience memory loss? This is precisely what happened to me during my very confusing KLS struggle. Years of being misunderstood, misdiagnosed, and misguided can alter your opportunity for a better outcome.
We don’t want that to happen to you!
I’m a KLSer who has spent the past eight years helping those struggling with KLS.
I know the struggle firsthand. But I also know there are strategies that will make life easier. Because of my ten plus years of experience living with KLS as well as the years of devotion to the KLS cause, I co-authored the KLS Guidebook. I know that I can help you find solutions.
Whether it’s finding the right doctor, learning support strategies, or learning caregiver strategies; I know KLS can become more manageable. The love and compassion I have in my heart has been transferred to this guidebook so that you can better understand, support, and care for your KLS loved one.
How Do I Know If This Is The Right Guidebook For Me?
- Do you have KLS?
- Do you know someone who has KLS?
- Are you a family member of a KLSer?
- Are you a friend of a KLSer?
- Do you have a primary hypersomnia diagnosis?
- Are you a Caregiver?
- Are you a Neurologist?
- Are you a Sleep Specialist?
- Are you a Psychologist?
- Are you a Pediatric Doctor or Nurse?
- Are you in the medical field?
- Do you want to learn how to support someone with KLS?
If you answered yes to any of these questions, then the KLS Guidebook is for You!
The KLS Guidebook is for you if you want…
…to know how KLS is diagnosed.
…to know the KLS symptoms and triggers.
…to know what studies KLSers can participate in.
…to know what the effects of KLS are on the sufferer.
…to know how to begin building a support system.
…to know the coping mechanisms.
…to know the caregiver strategies and tips.
…to know the qualities KLSers need to survive KLS.
…to know how to explain KLS to others.
…to know how not to let KLS define you.
…to know how you can help.
…to learn how to support the KLSer
…to learn how to manage school while living with KLS.
…to learn over a dozen money savings medical tips that can save you hundreds of dollars.
The KLS Guidebook is for You!
The resources you’ve been looking for and the support you need all in one easy step. Get your copy now!
I am donating 50% of the net proceeds to the KLS Foundation to be used toward scholarships for the second KLS International Conference and for additional funds for research! I kindly ask you to share this page with your friends and family via social media and email. All you have to do is click the share buttons at the top of this page.