Surviving chronic ilness through love: The fourth quality you need when living with a chronic illness is love. Without love there would be no healing. This brings me to the question; what is love? Because of having lived with a rare neurological condition for the past 15 years, my definition of love has expanded. Love used to be a warm fuzzy feeling. It used to be happiness. It used to be acceptance. It used to be joy. It used to be laughter. But today it means that and a whole lot more. Love means time. It means giving of your time not for a few minutes or for a few hours but for days, weeks months and years. It means being there for your loved one when they are at their lowest point in life. It means wiping their tears and soothing their pain. It means knowing who your loved one truly is even when no one else does. It means quitting your job to take care of your loved one. It means going to work to take care of your loved one. It means being an advocate for your loved one when he/she isn’t able to advocate for themselves. Love means not giving up on your loved one. It means sitting by their side to calm their sorrow, pain and fear. Love means searching for answers. Love means not going with the crowd when you know it’s wrong. Love means standing your ground. Love means accepting the truth. Love means becoming humble. Love means downsizing if you have to save your loved ones life. Love means finding a new path for your loved one if they are unhappy, bullied, or ostracized. Love means going the distance. It means never losing hope. It means believing. It means validating your loved one. Love means letting go of your expectations. Love means compassion. Love means accepting the person in whatever state they may be in. Love is value. Love is a choice. Love is doing the hard thing because it is the right thing. Love is a kiss and a hug. Love is a well meaning thought and wish. Love is healing. Love is kind. Love is powerful. Love is mom. Love is dad. Love is sister. Love is brother. Love is family. Love is friend. Love is God.
SURVIVING CHRONIC ILLNESS THROUGH LOVE
June 2, 2013 by
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All the best,
p.s. If you haven’t read the introductory section of my book about my 13 year battle with Kleine-Levin Syndrome, you can read it here: http://alannawonglife.com/real-life-sleeping-beauty/