How to Find the Right Doctor When Living With KLS

How to Find the Right Doctor When Living With KLS

Every KLS case is similar yet so different. What may help one person, may not work for another. The brain is so complex not every person’s reaction to a treatment is going to be the same. You may need to experiment with different medications and dosages to help you with your symptoms. That is why it is so important to find a good, compassionate doctor who is right for you. Finding the right doctor needs to be a top priority. Once you find the right doctor that is willing to work with you, your quality of life may improve, your health care will improve, you will feel safe sharing information, and you will know that your doctor cares about you. Finding the right doctor for KLS is not going to be easy. It will take effort and patience. A good way to begin your search is to use information from your current doctor’s experience. If you are seeing a doctor at the moment and are unhappy with the care you are receiving, ask yourself these questions. 1) What do I like about my doctor? 2) What don’t I like about my doctor? 3) What type of environment do I want? Writing down your likes and dislikes will provide you with a good list of what you want in a doctor.

How to Find the Right Doctor When Living With KLS

How to Find the Right Doctor When Living With KLS

Because KLS is rare, it may be difficult to find a doctor who knows about KLS. A good starting point is going to the KLS Foundation website and looking at the Doctors Familiar with KLS page to see if there is a doctor in your area familiar with the disorder. Here is the link: http://klsfoundation.org/doctors-familiar-with-kls/

If there is no one on the doctor’s list in your area, try calling one of the doctors closest to your area from the KLS Foundation’s list and ask for a doctor’s recommendation in your area. Or you could ask if that doctor would be willing to see the KLSer. You could search for a Sleep Specialist or a Neurologist in your area. Many Neurologists and Sleep Specialists are interested in rare conditions and would love the opportunity to work with you. Another suggestion is to ask for referrals in the KLS support groups. You can join the KLS Support group by clicking here: KLS Foundation Facebook Support Group. There may be a KLSer in your area who will know of a doctor familiar with KLS.

Doctors see many patients throughout the day, so you need to be prepared and ready for your appointment. When scheduling your appointment to see a doctor, ask how many minutes your appointment will be. Try to schedule enough minutes to get through all your concerns. Be prepared with a list of questions you want answered. An example might be, “What medication can relieve this symptom?” Be prepared to write down important points. Ask the doctor to write down any treatments, symptoms, medications, etc. you may want to research for yourself so that you can decide if that is the approach you would like to take. Having someone with you at your appointment is very important. That person will be your second set of ears and will be able to catch things you may have missed. Remember-you are the expert on KLS. You know your symptoms, your body, and your experiences. The doctor knows treatments. After you decide on a treatment together with your doctor, be sure to evaluate how that treatment is working. Stay on top of your medical decisions and be proactive in your care.

I hope you found this post helpful! If you did, please leave a comment below. I love hearing from you!

With Love,

Alanna

P.S. If you haven’t purchased the Kleine-Levin Syndrome (KLS) Guidebook, you can do so here: http://alannawonglife.com/shop/klsguidebook/ 

Read Disclaimer here: http://alannawonglife.com/disclaimer/

Somus Memory Foam Pillow Review & Alanna’s Tips to get a good night’s sleep!

Somus Memory Foam Pillow

Somus Memory Foam Pillow

Somus Memory Foam Pillow Review

It is a known fact that on average human being’s sleep a third of their lifetime. Therefore, it is critical to find the right sleeping products to help you get a good night’s sleep! Getting a good night’s sleep is vital for your health and offers a wide range of benefits for your body and mind. I came across the Somus Sleep Pillows and had to try them out. Somus company was kind enough to give me a set of very comfortable, high end luxury pillows to try! Keep reading to learn more about the benefits of sleep, how to get a good night’s sleep, and the Somus sleep products! You can purchase the pillows here: Somus Store

Why Somus? The Somus memory foam pillows are the finest choice when searching for a comfortable pillow! Whether you sleep on your stomach, back, or side the Somus Supreme Memory Foam pillow can adapt according to your body and provide a comfortable experience. One of the best features about the Somus Supreme Memory Foam Comfort pillow is that it comes with a hypoallergenic memory foam layer. This layer has the ability to conform your neck and head, which can assist your body to alleviate pressure points and enjoy a peaceful night’s sleep. They help tremendously with neck support! The Somus Comfort pillow has embedded bamboo charcoal and is combined with mesh siding to boost air into the pillow. It also absorbs odors, provides natural air moisture, and allows for excellent airflow. Traditional pillows are not in a position to cater to these important keys so that may be the reason why you may not be getting a relaxed and peaceful sleep if you are using a traditional pillow. Check out the pillow here: Somus Store

Apart from the Somus pillows, the memory foam luxury mattresses that are being produced by Somus are high quality. When you combine the Somus pillows with their mattress, you will receive a perfect blend of support and comfort. This mattress comes along with a quilted bamboo cover, which makes it soft and breathable. The memory foam that can be found in this mattress is made from raw materials that were obtained from Canada and USA. The two layer construction of this mattress is impressive and it plays a major role behind the functionality. It consists of 6 inch support foam at the bottom and 2 inch memory foam at the top. The bamboo cover will keep your body cool throughout the night and you will never feel any discomfort.

As you can see, Somus sleep products offer everything that you need to have in order to enjoy a peaceful night’s sleep. They provide excellent support to your body and you will not have to suffer from any negative side effects after some time. These sleeping products are marked at affordable prices. I highly recommend you purchase their products here: In fact, the money you spend to buy Somus sleep products will be a great investment towards your future health! The following link is where you can purchase the Somus Pillows: Somus Store

Reason Why Getting a Good Night’s Sleep is Vital:

  • Sleep helps to restore your brain.
  • Sleep helps form new pathways to assist with learning and retaining information.
  • Sleep can improve your memory.
  • Sleep can help you maintain a healthy weight.
  • A good night’s sleep can lower stress.
  • A good night’s sleep helps your immune system stay strong.
  • A good night’s sleep can help with creativity.
  • A good night’s sleep can improve your attention and focus.
  • A good night’s sleep improves learning.
  • A good night’s sleep is key to feeling energized for the next day.
  • A good night’s sleep can improve the quality of your life.

 

How to get a Good Night’s Sleep?

  • Picking out the right mattress for you, is critical to get a good night’s sleep. Check out a list of my favorite mattresses here:
  • A comfortable pillow is critical to get a good night’s sleep. Check out the following pillows that I love:
  • A cool room with good air flow can help you get a good night’s sleep.
  • A dark and quiet room can help you get a good night’s sleep.
  • Keeping your room clean can help you get a good night’s sleep.
  • Taking a warm bath may help you with getting a good night’s sleep.

I hope you enjoyed this post! Comment below and let me know how important sleep is for you.

With Love,

Alanna Wong

Goodnight KLS! From Wong’s; Hawaii

The following photo is by: Diane, Melinda, Kaia and Randy

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, to the Wong’s for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Ehrick; Mexico

The following photo is by: Erick

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Ehrick for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Hurley; USA

The following photo is by: Hurley

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Hurley for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Bentley; USA

The following photo is by: Bentley

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Bentley for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

5 Reasons Why You Should Track Your Progress When Living With Chronic Illness

Track Your Progress

Track Your Progress

5 Reasons Why You Should Track Your Progress When Living With Chronic Illness

It is so important to track your progress and milestones when living with a chronic illness. Whether you decide to track your treatment plan, health, fitness, emotional well-being, food intake, etc., tracking your progress will be beneficial to you and your health. Below I share with you 5 reasons why tracking your progress is so important! I also have a surprise for you in this article so be sure to read the whole article!

Tracking your progress will let you know if your plan is working for you. This will help you be able to tell over time if something is helping you in your health or making things worse. If your plan is not working, you will be able to make changes. You want to know if something is helping you or making you worse and the only way to know is to track it.

Tracking your progress shows you how far you have come since tracking your first goal. Seeing your progress and how far you have come since setting a goal gives you an instant boost of confidence!

Tracking your progress helps you stay focused on the positives instead of negatives. It is very common to forget your milestones if you do not keep track of them. Keeping a log of your progress will help you reach your milestones. Tracking your progress will show you what you have accomplished so far! Seeing what you have accomplished will make you feel good about your progress! Misfit is a great way to help you stay focused on your health and fitness goals. I am giving away a free Misfit tracker to help you keep track of your goals. You can enter the contest here: http://woobox.com/z67oms

Tracking your progress tells you what is helping you the most. When you track your progress you are able to know what is helping you most and what isn’t. You can then eliminate what isn’t helping and stick with what is helping you.

Tracking your progress keeps you motivated. Tracking your progress keeps you motivated to keep going! When you see your successes, it makes you want to work that much harder to attain your next milestone!

I hope you enjoyed this post! Please comment below to let me know you were here! If you would like a personal activity and sleep monitor that is stylish, enter here: http://woobox.com/z67oms

With Love,

Alanna Wong

 

 

Goodnight KLS! from Emelie; Sweden

The following photo is by: Emelie

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Emelie for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Randi; USA

The following photo is by: Randi

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Randi for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Mat; USA

The following photo is by Mat:

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Mat for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

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