Goodnight KLS! from Tammy; Canada

The following photo is by: Tammy 

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Tammy for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Stijn; Belgium

The following photo is by: Stijn

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Stijn for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Mvg; Belgium

The following photo is by: Mvg

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Mvg for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Madison; Kentucky

The following photo is by: Madison

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Madison for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Jayden; England

The following photo is by: Jayden

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Jayden for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Bill; Colorado

The following photo is by: Bill

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Bill for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! From Sarah; UK

The following photo is by: Sarah 

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Sarah for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

2015 Hypersomnia Conference

2015 Hypersomnia Conference

2015 Hypersomnia Conference

2015 Hypersomnia Conference

I am so pleased to announce that the Hypersomnia Foundation is hosting the 2015 Hypersomnia Conference! The theme of the conference is, “Building Our Future Together!”  I am honored to be speaking about KLS at the conference!

The conference will be held on Friday July 17, 2015 – Saturday July 18, 2015 at Emory Conference Center Hotel. Emory Conference Center Hotel is located at 1615 Clifton Road, NE, Atlanta, Georgia 30329.  Tickets are on sale NOW!  To register, click on the following link: http://www.hypersomniafoundation.org/about-us/annual-hypersomnia-conference/2015-hypersomnia-conference/

See video below:

Please share this event with anyone you know that could benefit from this event! And be sure to “like” the Hypersomnia Foundation Facebook Page if you haven’t already done so. You can “like” the page here: https://www.facebook.com/Hypersomniafoundation Thank you to Jenn Beard, Chair of the conference committee for the 2015 Hypersomnia Conference, for the information! 

With Love,

Alanna Wong

12 Tips for Living With Kleine-Levin Syndrome (KLS)

Living With KLS12 Tips for Living With Kleine-Levin Syndrome (KLS):

Environment: Create a physical environment that promotes safety and reduces fear. The goal is to promote feelings of security and belonging for the KLSer. Try to keep the environment very quiet with minimal stimulation. Some ideas for the caregivers are to: 1) put your phones on silent. 2) Draw the blinds so that it is not bright in the room. 3) Watch television with closed captioning so that there is no noise. 4) Let the KLSer sleep. Avoid trying to wake him/her up or keep him/her awake. KLSers need their sleep. 5) Make sure the KLSer stays hydrated.  [Read more…]

Living Bold Despite Living With KLS!

Thank you for your support!

Thank you for your support!

Living Bold Despite Living With KLS! 

I am blessed to have such an amazing support system! Gratefully, I have gone from not having many friends to building a community of supportive people! I thrive on their messages of strength and hope. I have recently entered a contest for people living bold despite living with a health ailment. If you have a moment, do you mind voting for me? I would so appreciate your vote! You can “vote” for me once a day through August 8th. You can vote here: http://woobox.com/9v5v9b/vote/for/4216554Through my journey, I have discovered that when you give, you receive and if you ask, you shall receive. I am grateful for the people I am connected to! Thank you! 

 

 

With Love,

Alanna

P.S. If you haven’t read the introductory section of my book about my 15 year battle with Kleine-Levin Syndrome, you can read it here: http://alannawonglife.com/real-life-sleeping-beauty/ 

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