Goodnight KLS! from April; USA

The following photo is by: April

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/ 

Thank you, April for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! From Wong’s; Hawaii

The following photo is by: Diane, Melinda, Kaia and Randy

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, to the Wong’s for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Ehrick; Mexico

The following photo is by: Erick

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Ehrick for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Emelie; Sweden

The following photo is by: Emelie

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Emelie for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Randi; USA

The following photo is by: Randi

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Randi for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Mat; USA

The following photo is by Mat:

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Mat for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Mary; Canada

The following photo is by: Mary

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Mary for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Tammy; Canada

The following photo is by: Tammy 

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Tammy for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

2015 Hypersomnia Conference

2015 Hypersomnia Conference

2015 Hypersomnia Conference

2015 Hypersomnia Conference

I am so pleased to announce that the Hypersomnia Foundation is hosting the 2015 Hypersomnia Conference! The theme of the conference is, “Building Our Future Together!”  I am honored to be speaking about KLS at the conference!

The conference will be held on Friday July 17, 2015 – Saturday July 18, 2015 at Emory Conference Center Hotel. Emory Conference Center Hotel is located at 1615 Clifton Road, NE, Atlanta, Georgia 30329.  Tickets are on sale NOW!  To register, click on the following link: http://www.hypersomniafoundation.org/about-us/annual-hypersomnia-conference/2015-hypersomnia-conference/

See video below:

Please share this event with anyone you know that could benefit from this event! And be sure to “like” the Hypersomnia Foundation Facebook Page if you haven’t already done so. You can “like” the page here: https://www.facebook.com/Hypersomniafoundation Thank you to Jenn Beard, Chair of the conference committee for the 2015 Hypersomnia Conference, for the information! 

With Love,

Alanna Wong

12 Tips for Living With Kleine-Levin Syndrome (KLS)

Living With KLS12 Tips for Living With Kleine-Levin Syndrome (KLS):

Environment: Create a physical environment that promotes safety and reduces fear. The goal is to promote feelings of security and belonging for the KLSer. Try to keep the environment very quiet with minimal stimulation. Some ideas for the caregivers are to: 1) put your phones on silent. 2) Draw the blinds so that it is not bright in the room. 3) Watch television with closed captioning so that there is no noise. 4) Let the KLSer sleep. Avoid trying to wake him/her up or keep him/her awake. KLSers need their sleep. 5) Make sure the KLSer stays hydrated.  [Read more…]

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