Goodnight KLS! from Lois; England

The following photo is by: Lois

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Lois for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Madison; Kentucky

The following photo is by: Madison

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Madison for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Jayden; England

The following photo is by: Jayden

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Jayden for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Bill; Colorado

The following photo is by: Bill

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Bill for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! from Susan; Colorado

The following photo is by: Susan

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Susan for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! From Ashley; Oregon

The following photo is by: Ashley

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Ashley for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

Goodnight KLS! From Sarah; UK

The following photo is by: Sarah 

Goodnight KLS!

Goodnight KLS!

Do you want to participate in the Goodnight KLS! Campain and get a free wristband? It’s easy! Click on the following link to learn more about how you can participate: http://alannawonglife.com/get-kleine-levin-syndrome-kls-wristband-goodnight-kls-campaign/

Thank you, Sarah for participating in the Goodnight KLS! Campaign and helping spread the word about KLS!

12 Tips for Living With Kleine-Levin Syndrome (KLS)

Living With KLS12 Tips for Living With Kleine-Levin Syndrome (KLS):

Environment: Create a physical environment that promotes safety and reduces fear. The goal is to promote feelings of security and belonging for the KLSer. Try to keep the environment very quiet with minimal stimulation. Some ideas for the caregivers are to: 1) put your phones on silent. 2) Draw the blinds so that it is not bright in the room. 3) Watch television with closed captioning so that there is no noise. 4) Let the KLSer sleep. Avoid trying to wake him/her up or keep him/her awake. KLSers need their sleep. 5) Make sure the KLSer stays hydrated.  [Read more…]

Alanna Wong Featured On Invisible Disabilities Association Non-Profit Website

Invisible Disabilities Association

Invisible Disabilities Association

I am honored to be a part of the Invisible Disabilities Association (IDA) community! I connected recently with Wayne Connell, Founder of IDA and his wife Sherri. I am grateful that we have crossed paths! I love IDA’s mission: “The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit.” I am honored to be an Invisible Disabilities Association Guest Blogger for their website and to have joined the IDC Welcome Team! Through my journey, I have discovered that when you give, you receive. I am grateful for the blessings in my life and the inspiring individuals I am connected to! My most recent blog post on IDA’s website is about sharing your illness openly. You can read the article here: http://invisibledisabilities.org/invisible-no-more/sharing-illness-others-alanna-wong/

I hope you enjoyed this post! If you did enjoy it, please share it with your friends and leave a comment below! I love hearing from you!

All the best,

Alanna Wong

P.S. If you haven’t checked out The Invisible Disabilities Association (IDA)’s I encourage you to do so here: https://www.facebook.com/InvisibleDisabilities

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